It was September 13, 2013 when Jim and Karen Raffone received the news that no parent should ever get– they were told that their child was sick. On that day, their now 7-year-old son, Jamesy, was diagnosed with Duchenne Muscular Dystrophy (DMD): a rare mutation of the dystrophin gene that results in severe muscle degeneration.
The Raffone’s then sought a number of professional opinions, only to be given the same heartbreaking prognosis from each doctor: “go home and love your son – there is nothing we can do.” Unsatisfied with accepting their child’s death sentence, Jim and Karen set out to reverse the seemingly insurmountable odds against them—this is when JAR of Hope was born.
Spearheaded by Jim Raffone, JAR of Hope is an organization that gives Jamesy and thousands of boys just like him the chance to beat a disease that currently has no cure. Through various funding and awareness campaigns, JAR of Hope remains steadfast in its mission to knockout a disease that has, until now, remained undefeated. With each dollar raised, we will fight to finance the necessary research that could result in enhanced Duchenne treatment. The hope is to cure this horrific illness, and to preserve the innocent smiles of Jamesy and other boys suffering from Duchenne for as long as possible.